These videos will show you how to collect a specimen for us and how to test your own specimens.
GoViral is studying how community viral symptom information combined can be used to understand an individual's risk of disease. If you are at least 18 years old and would like to participate in this study, we would like to provide you with an easy to use specimen collection kit you can use at home if you or someone in your household becomes sick. Please read the study explanation. If you choose to participate, please click on I ACCEPT at the bottom of the sign up screen to consent to participate.
Purpose of the research: The study will examine viral and symptom information from people in one community and examine how this can be used to predict an individual's risk of influenza and other respiratory and gastrointestinal illnesses, and how they might change their public health behaviors accordingly.
What you will do in this research: You will be reporting your symptoms using the GoViral website and you will receive a kit including the sample collection materials. If at any time you or someone in your household gets sick, you are asked to provide a nasal swab, saliva or fecal sample. You will be directed step-by-step of what to do via the online instructional videos, then asked to return the kit with prepaid postage or drop it off where you picked it up. Later in the season we will ask you a few extra online questions about your interpretation of the results from you and/or your community. We will return individual results where possible in line with state regulations, otherwise all participants will have access to aggregate, anonymous results. The results in this study are to be used for research purposes only.
About the study: The study is being conducted by Dr. Rumi Chunara at New York University, and it is being funded by the National Science Foundation award number IIS - 1343968. You will receive a specimen collection kit which will be mailed to you, using your mailing address. Time required: If you or someone in your household gets sick and provides the samples, it will take 10-15 minutes. The online survey will take only about 2 minutes.
Risks: There is may be the risk of unintentional disclosing of privileged information. There is also a risk of participants feeling a time burden of having to complete the symptom surveys and biological samples.
Benefits: The study will help describe illness and health issues in your community. The results will be written up and published.
Confidentiality: The information you share in this study is confidential. Your data will be kept in a secure database. Only researchers will have access to your information. No personal data or data that would let someone identify you will ever be made public. All data gathered through the project will be kept in the Open Humans ecosystem. Storage practices will be in accordance with best practices including using SSL, hashed passwords, limited admin access and database backups. Specimens sent to the lab will be de-identified and coded. Only lead investigator and approved research personnel will be able to map these to individuals. Specimen aliquots will be discarded after testing according to standard biological waste protocols at Marshfield Labs, Wisconsin.
Participation and withdrawal: Your decision to take part in this study is voluntary. You may refuse or stop at any time without penalty. Participants wishing to join this study may click on I ACCEPT at the bottom of the signup screen to consent to participate only if 18 years of age or older. For participants under the age of 18, recruitment will occur through the garnered support of local university-based program. Child assent must be obtained and parental permission form must be completed for participants under the age of 18 to join the study.
Questions, concerns, or problems:
Participants wishing to join this study may click on I ACCEPT at the bottom of the signup screen to consent to participate only if 18 years of age or older.
Here are some of our findings from last year's flu season.
Collected by volunteers like you in Massachusetts and New York
Contained a pathogen that could be identified with top quality PCR instruments.
Of the viruses that we could identify were coronaviruses.
We hope to collect 10x more data this year. Be a part of our team!
Some participants will be asked to perform a few extra tests at home.
Flu and Cold kits contain a saliva collection tube and a nasal swab. Foodborne kits contain fecal swab. Watch the videos to learn how to use the kits.
Some of our test kits contain additional materials which you can use to test yourself at home.
Help track disease spread by sending us specimens when you're sick. Participation is free and information you share is anonymous. A confirmation message will show up here to acknowledge successful registration.
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